Twin Registries and Study Groups
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ADHD Australia
'This site gives descriptions of ADHD-C and ADHD-I, comorbid disorders, treatments, alternative treatment, informs re research and ADHD, lists current clinical trials in Australia. Provides more information about Bipolar and Asperger's. Lists relevant sites for further information in Australia and overseas. Has on-line a book written by the author of the web site (a person with AD/HD-C). www.adhd.org.au also has "Honor Code" endorsement which requires it to met the strict requirements of the Health on the Net Foundation.'
Website: http://www.adhd.org.au |
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ADHD Resource
'This is a website setup to provide useful, current information on genetic research on attention deficit hyperactivity disorder (ADHD).
It is hoped that the information provided on these pages will be particularly useful for research scientists focusing on ADHD, but also
for the general public looking for a starting place to locate scientific information on ADHD data. This site is not intended to be
similar to the parent support sites or any of the commericial sites but it is hoped that visitors to those sites may also find the information here useful.'
Website: http://adhd.curtin.edu.au |
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Australian Twin Registry
'The Australia Twin Registry is a not-for-profit organisation which facilitates and supports medical and scientific studies that involve the participation of twins and or their relatives. These studies use the special characteristics of twins to enable questions of health and wellbeing relevant to Australians to be answered in ways that they otherwise could not. Members of the Australian Twin Registry are provided with information via letter regarding twin studies that they may be eligible for, and decides on their involvement. If the twin is interested in the study, they then fill in a response form which provides permission for the Australian Twin Registry to pass on their contact details to the research group running the study.
Twins of all types, of any age and in any state of health, are welcome to join the Australian Twin Registry. To register, or find out more, please call us on Freecall 1800 037 021 or register online'
Website: http://www.twins.org.au |
Finnish Twin Cohort Study
Website: http://www.twinstudy.helsinki.fi/
ISTS
Website: http://www.ists.qimr.edu.au
Mid Atlantic Twin Registry
'a registry of the families of preschool, school age, and adult twins born or living in North Carolina, Virginia, and
South Carolina'
Website: http://www.matrvcu.edu
Twin Study at Harvard
Website: http://twins.wjh.harvard.edu/
National Twin Registry - Sri Lanka
Website: http://infolanka.com/org/twin-registry/
Southern California Twin Project
'coordinating a series of research studies of twins'
Website: http://www-rcf.usc.edu/%7Elbaker/twins.html
University of Wisconsin Twin Center
'conducting research into socio-emotional development from infancy to middle school years in twins'
Website: http://psych.wisc.edu/goldsmith/
Western Australia Twin Registry
'The WA Twin Register is the only population-based register of twins and other multiples in Australia, and one of a few twin-family registers anywhere in the world'
Website: http://watr.genepi.org.au/
Twinspiratie
A Dutch organisation for parents of multiples
Website: http://twinspiratie.nl/
These sites are listed as a resource and their inclusion does not imply our endorsement.
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